Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

Mom issues warning after 10-year-old son collapses after playing in the ocean

A day at the beach is the best way to escape the oppressively high heat, but despite the fact that it might offer some respite, one mother from Massachusetts discovered that the shoreline also has a special set of risks.

She now wants to alert people to this.

Despite the fact that the incident occurred over a week ago, Heather Cassini reported that she is still “shaking.”

Declan, Cassini’s 10-year-old son, suddenly reported he didn’t feel well on July 4 as the 40-year-old mother and her were in Hampton Beach in New Hampshire.

Cassini wasn’t worried at first. Declan had been playing in the ocean, and it was hot.

In a now-viral Facebook post, Cassini wrote, “I thought the breakfast was just too much for the waves and he just needed to lay down.” Declan became “disoriented” and fell into a sunbather as soon as they started to head back so he could lay down.

He managed to get back up on his feet, but he fell to the ground once more.

Cassini told Today.com, “I’m trying desperately to pick him up because I’m pregnant.” He is throwing up and experiencing bouts of unconsciousness. He was really pale.

When a group of women sat close noticed the disturbance, they moved quickly to intervene. While monitoring his vitals, paramedics attempted to keep him warm and alert.

“May God bless everyone in our vicinity. She remarked, “There were so many nurses.”

“He was up and talking after what seemed like a lifetime. Cassini writes, “We got him to the car and waited for him to feel better.

Declan was found to have hypothermia due to the 52 degree ocean temperature.

Cassini remarked, “I had no idea that this could happen.” “I never thought about cold shock; you think about sunburns and dehydration and all the things that can happen in the water.”

Declan’s miraculous recovery has led Cassini to want to alert others to the risk of hypothermia in the summer.

“Just a heads up to parents who have children who adore the water and don’t feel chilly. It doesn’t necessarily follow that they can handle it just because they can.”

It never occurred to me that hypothermia could occur on a sweltering summer day! Not just for those who are parents, but for everyone, this is such a vital message.

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