Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

James Earl Jones, acclaimed actor and voice of Darth Vader, dead at 93

James Earl Jones, the beloved stage and screen actor who lent his iconic, deep voice to Darth Vader in Star Wars and Mufasa in The Lion King, has died at 93.
Regarded as one of the best actors of his generation, Jones’ career spanned Shakespeare to Hollywood hits. He is one of the few actors to have won an Emmy, Grammy, Oscar, Tony Award.
The actor’s death was reported by Deadline, via his representatives at Independent Artist Group.
James Earl Jones was born January 17, 1931 in Arkabutla, Mississippi and raised by his grandparents in Dublin, Michigan. While he would later become one of the most famous voices in the world, he says he suffered from a stutter in his youth.

“I was a stutterer. I couldn’t talk,” Jones recalled in a 1996 interview. “So my first year of school was my first mute year, and then those mute years continued until I got to high school.” A teacher encouraged him to overcome his stutter by reading poetry aloud.
Jones served in the US Army during the Korean War, and after decided to pursue a career in acting. He studied at the American Theatre Wing, working as a janitor to support himself. By the 1960s, Jones was establishing himself as one of his generation’s great Shakespearean actors, playing roles like Othello and King Lear. He also made his film debut in Stanley Kubrick’s classic 1964 comedy Dr. Strangelove, as bombadier Lt. Lothar Zogg.

In 1967, he played a boxer in The Great White Hope, winning the Tony Award for Best Actor in a Play. He reprised the role in the 1970 film version, receiving his first Academy Award nomination.
Amidst all his acclaimed acting work, Jones soon landed his most well-known and iconic role — one where he didn’t even have to appear on set: voicing the villainous Darth Vader in Star Wars. While Vader was played in costume by David Prowse, Jones dubbed over the lines with his own deep bass voice, helping to create one of the most famous characters in movie history.
While Jones originally opted to go uncredited for the role, it has become perhaps his most famous performance. He continued to voice Vader for decades, in the two sequels The Empire Strikes Back and Return of the Jedi, the prequel Revenge of the Sith and the spin-off Rogue One. In 2022, Jones retired from the role, but signed an agreement for his voice to be used in future projects using artificial intelligence and archive recordings.

Jones also provided the voice of another beloved movie character, Mufasa in the 1994 Disney film The Lion King. Jones later reprised the role in the 2019 remake.
Throughout the ’80s and ’90s, Jones appeared in many Hollywood films, including Conan the Barbarian, Coming to America, Field of Dreams, and The Hunt for Red October, Patriot Games and The Sandlot. He also won his second Tony Award, starring in the original production of August Wilson’s Fences.
He received eight Emmy Award nominations for his television work, winning twice in 1991: Outstanding Supporting Actor in a Limited Series or Movie for Heat Wave and Outstanding Lead Actor in a Drama Series for Gabriel’s Fire.

Jones also continued to perform on Broadway: over the past 20 years he starred in revivals of On Golden Pond, Cat on a Hot Tin Roof, Driving Miss Daisy, The Best Man and You Can’t Take it With You.
Jones was the recipient of many awards and honors throughout his acclaimed career. He received an Honorary Academy Award in 2011, making him one of the only people to have won an Emmy, Grammy, Oscar and Tony Award, known as “EGOT.” Broadway’s Cort Theatre was renamed the James Earl Jones Theatre in his honor in 2022.
Rest in peace to the iconic James Earl Jones, one of the greatest actors of our time — please share this

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