Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
THE TRANSFORMATION OF SHILOH JOLIE-PITT: FROM OUTCAST TO RED CARPET STAR AS JOHN
Sometimes, the connection between actors working closely together on set extends into their personal lives, as we’ve seen happen many times before.
For instance, take the once-famous couple, Brad Pitt and Angelina Jolie, who are now divorced.
Back in 2004, when they started working on “Mr. and Mrs. Smith,” Pitt was still married to Jennifer Aniston. However, that didn’t stop him from falling in love with Jolie, which gave birth to the iconic “Brangelina” couple.
“Because of the film, we ended up being brought together to do all these crazy things, and I think we found this strange friendship and partnership that kind of just suddenly happened. I think a few months in I realized, ‘God, I can’t wait to get to work.’ … Anything we had to do with each other, we just found a lot of joy in it together and a lot of real teamwork. We just became kind of a pair,” Jolie mentioned.
Throughout their 12-year relationship, they welcomed six children: the twins Vivienne and Knox, and their three biological children, Maddox, Zahara, and Pax, alongside Shiloh.
The media frenzy surrounding Jolie’s pregnancy was intense. Paparazzi followed them everywhere, and magazines were willing to pay a fortune for a photo of the soon-to-be-famous baby.
New York Magazine even said, “Not since Jesus has a baby been so eagerly anticipated.”
Shiloh was born on May 27, 2006. The couple made a staggering $14 million from the sale of her picture, which they generously donated to UNICEF.
“While we celebrate the joy of the birth of our daughter, we recognize that 2 million babies born every year in the developing world die on the first day of their lives. These children can be saved, but only if governments around the world make it a priority,” the couple stated.
Shiloh, who’s about to turn 16, has been in the public eye practically since birth. She’s inherited the best from her famous parents and is undeniably beautiful. But there’s something about her, especially her style, that has caught people’s attention. She also prefers to be called John by her parents and siblings.
During a conversation with Oprah, Pitt admitted, “She only wants to be called John. John or Peter. So it’s a Peter Pan thing. So we’ve got to call her John.” He later added, ‘Shi, do you want …’ – ‘John. I’m John.’ And then I’ll say, ‘John, would you like some orange juice?’ And she goes, ‘No!’ So, you know, it’s just that kind of stuff that’s cute to parents, and it’s probably really obnoxious to other people.”
Jolie also mentioned her daughter’s preference for dressing like a boy to Vanity Fair:
“She wants to be a boy. So we had to cut her hair. She likes to wear boys’ everything. She thinks she’s one of the brothers.”
However, neither Pitt nor Jolie seemed to have an issue with it. They supported their daughter in whatever choices she made.
Shiloh held a special place in Jolie’s heart, so it was a bit challenging for her to stop using that name. Nonetheless, she respected her daughter’s wishes.
Thanks to the custody arrangements put in place after the couple’s separation, all the children get quality time with both of their parents. Pitt and Jolie are both devoted parents who go above and beyond for the well-being of their children.
In 2021, Shiloh made headlines when she joined her famous mother at the premiere of Marvel’s “Eternals.” She wore the same Dior gown that Angelina had donned in 2019 at a press conference for “Maleficent: Mistress of Evil.” Shiloh had her long hair in a bun and looked absolutely stunning.
For the Rome premiere, she opted for a little black dress paired with yellow and black sneakers.
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