Céline Dion Shares Raw Video of Stiff-Person Syndrome Crisis in Never-Seen Footage from New Documentary

In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.

Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.

After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).

Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.

Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”

In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?

The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.

“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”

Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.

Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”

Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”

Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.

Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.

Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”

I Caught My Future Mother-in-Law Making Horrible Remarks About Me – She Was Unaware She’d Regret It on Our Wedding Day

I thought my future mother-in-law was loving and supportive of my union with her son. But she detested me and had been pretending from the day we met! My tale is of deceit, lies, and ultimately revenge! With my new husband’s support, we put her in her place!

I, Joana, 34, was looking forward to finally marrying the man of my dreams, my fiancé Leo, 35. But I didn’t expect that his family would try to come between us.

Here’s some background before I get into how we got here. Leo and I have been together for two blissful years. We are finally getting ready for our big day, which is coming soon. But what I didn’t expect was to overhear my fiancé’s family making ulterior plans against me.

A woman lying in bed reading a book | Source: Pexels

A woman lying in bed reading a book | Source: Pexels

So this is what happened. I woke up the other day feeling unwell and decided to call in sick to work. The plan was for me to just stay home nursing myself back to health. Since Leo had already left the apartment for his job, I decided to text him, saying:

“Hi babe, I hope you’re having a good morning. I woke up feeling under the weather and decided to stay home for the day. I already called in sick, so please bring me lunch if you can. I love you!”

I remember the day clearly. Leo surprised me by arriving at our apartment during his lunch break! I thought he’d read my message and had actually brought me some food.

A woman texting on her phone while lying in bed | Source: Pexels

A woman texting on her phone while lying in bed | Source: Pexels

In my excitement, I was about to go out of the bedroom to hug him and thank him for coming to check on me when I heard other voices.

My fiancé had come over with my future mother-in-law (MIL) and sister-in-law (SIL). From the conversation they were having, it seemed they’d come over to pick something up from our apartment during Leo’s lunch break. He was helping his sister move.

Yet, Leo didn’t look for me when he arrived, which made me realize he hadn’t read my text. So he didn’t know I was home. “You guys wait here, let me go and throw this trash out, and then we can go,” he said as he emptied the bin and went outside.

A man outside holding a trash bag | Source: Freepik

A man outside holding a trash bag | Source: Freepik

The moment he went out the door, his mother and sister began trashing me! They were mocking everything from my kitchen decor to my personal style! “Who chooses such colors for a kitchen,” my future SIL laughed as I listened.

“Never mind the kitchen, what about the way she looks?” my future MIL added laughing at me too. “She’s not a good fit for Leo,” she commented, continuing to say disgusting and quite hurtful things about me.

An older woman laughing and conversing with a younger one | Source: Freepik

An older woman laughing and conversing with a younger one | Source: Freepik

Lying in bed I seethed with a mixture of shock and anger! I couldn’t believe the disdain they harbored for me. Quietly, I reached for the old dictaphone on my nightstand and pressed record because my phone was flat. Every harsh word, every cruel laugh captured, unbeknownst to them.

I was SO hurt! I didn’t know that they felt this way about me. Every time we conversed or I was around them, they were kind and supportive. They’d even offered to help with the wedding planning, for goodness sake!

A photo of an old dictaphone | Source: Pixabay

A photo of an old dictaphone | Source: Pixabay

Just when I thought I’d heard enough and they couldn’t stoop any lower, it got even worse! My future MIL continued speaking ill of me, dropping a huge bombshell to her daughter about her crazy plan, saying:

“The silly girl doesn’t even suspect that she’ll NEVER become a mother to our future grandkid because I’m going to use Leo’s ex as an egg donor.”

A close-up of a woman's shocked face | Source: Pixabay

My jaw DROPPED! The ex she mentioned was Eve, the blonde model-looking woman that Leo dated for four years before me. He’d broken up with her after proposing when he found out she’d been cheating on him.

The infidelity happened with different men and throughout their relationship!

That was the person whose grandchildren Leo’s mother wanted!? The reason why they didn’t want my grandchildren was because my genes were “tainted” by my “fat and diabetic parents,” and weren’t good enough.

A happy middle-aged couple embracing while holding snow shovels | Source: Pexels

A happy middle-aged couple embracing while holding snow shovels | Source: Pexels

I mean, I understood that I was nothing like Eve. I was short, and a bit chubby, and I spoke my mind when forced to, but I didn’t deserve to be trashed like that!

That evening when Leo and I were alone, I played back the recording. The hurt was clear in his eyes as he listened to his mother’s unfiltered opinions.

At first, he tried to downplay it, suggesting they were venting. But the reality of their betrayal sank in as he continued to listen.

A woman looks at the camera while her man lies back contemplating something | Source: Pexels

A woman looks at the camera while her man lies back contemplating something | Source: Pexels

He confronted his mother the next day, demanding she apologize, but she refused. The woman was adamant that there was nothing wrong with her behavior! Leo, torn between his family and me, devised a plan.

“Let’s show everyone her true colors,” he said, his resolve hardening. My future MIL didn’t even suspect she would regret what she said on our wedding day as my fiancé and I made our plans.\

A happy couple sitting in their bedroom | Source: Pexels

A happy couple sitting in their bedroom | Source: Pexels

The wedding day arrived with tension simmering beneath the surface of every smile and congratulations. Leo’s mother delivered her toast, her voice dripping with fake affection and well-wishes.

As the applause died down, Leo stood and nodded at me. My heart pounding, I hit play on the speaker system. The venomous words filled the room, each syllable a sharp contrast to the loving speech she had just given.

We had decided that after his mother’s “sweet” toast at our wedding, we would play the recording of her talking to my SIL in our apartment for all to hear.

A woman reacting in shock | Source: Freepik

A woman reacting in shock | Source: Freepik

The room fell silent. You could hear a pin drop as the reality of her duplicity settled over the crowd. Leo’s mother, her face a mask of horror and embarrassment, stood frozen in her seat.

Then, as the recording ended, she walked out, her exit a walk of shame under the stunned gazes of family and friends. My SIL also darted her eyes around at everyone before following suit!

Leo, a supportive and loving new husband, squeezed my hand, his eyes apologetic, and yet fierce. “I’m sorry you had to endure that,” he whispered. “But I hope now we can start fresh, without secrets or lies.”

A couple dancing on their wedding day | Source: Pexels

A couple dancing on their wedding day | Source: Pexels

As the wedding continued, the atmosphere lightened. People approached us, offering words of support and expressing their shock. Leo and I realized that this ordeal, as painful as it was, might have purged the venom that threatened our future together.

Looking back, I often wonder if happiness in marriage can truly coexist with familial strife. That day, Leo chose us over the blind allegiance to his family’s pretenses.

In doing so, he gave our love a fighting chance.

A couple embracing on their wedding day | Source: Pexels

A couple embracing on their wedding day | Source: Pexels

Despite the drama, or perhaps because of it, we understood that together, we could face anything. As we danced under the soft glow of the reception lights, I felt a sense of triumph, not from revenge, but from the affirmation of our unity in the face of adversity.

A happy couple embracing at the beach | Source: Pexels

A happy couple embracing at the beach | Source: Pexels

While Joana’s tale ended on a good note with her new husband choosing her over his family, things were not the same for Jane. In the following story, Jane discovers her fiancé’s true nature and with the support of their friends, she leaves him choosing to know her true worth.

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