They may have been born more than a decade apart, but these siblings still have one remarkable thing in common.
Albinism is a rare genetic disorder that causes a lack of pigmentation in the skin, eyes and/or hair, giving albino people a unique look:
It’s very rare to have an albino child… which makes it remarkable that one Kazakh couple had not one, but two albino children 12 years apart.
Meet Asel and Kamila, the incredibly unique siblings that have turned into in-demand models:
Asel is the older sibling at 14. Her mother, Aiman Sarkitova, said she was stunned when she was born albino.
“When I gave birth to my eldest, genetics were not so developed with us,” she told the Daily Mail. “It is developing only now. The doctors were shocked.”
Imagine their surprise when, 12 years later, Kamila was born with the same condition.
It’s an incredible, striking sight to see these two siblings together—so the two teamed up and became a modeling duo.
Asel has already been modeling since she was 10, but with her 2-year-old sister at her side she’s become even more in-demand. The pair have over 33,000 followers on Instagram.
While their albinism has led to big success, it’s not always easy. The condition is also associated with medical conditions like a sensitivity to sunlight.
“If I go outside in the afternoon, then I definitely apply sunscreen, put on clothes to protect my skin, headgear or use an umbrella,” Asel said.
“In the evening, when there is almost no sun, it’s much easier for me.”
But through whatever ups and downs life throws at them, they’ll always have each other.
The condition is so rare that albino people can feel alone, but these two sisters are lucky that they’ll always have a family member just like them.
And hopefully, their success as models will shed some light on albinism and show how uniquely beautiful albino people can be.
“Many people do not know what albinos are,” Asel said.
We think these sisters are stunning! Share this remarkable story and beautiful photos!
A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack
Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
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