A baby girl who ‘never stops smiling’ is living with a rare skin condition that makes her skin crack

Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.

Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.

Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.

Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.

When her husband visited Jennie, he was strangely silent and looked worried and puzzled.

“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.

“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”

Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.

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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.

There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.

In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.

“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.

She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”

Boy Stuns Prom in Red Ballgown and Lipstick – Teachers Can’t Hold Back the Tears

A boy named Korben dreamed of wearing a ball gown to prom from a young age. Four years later, his parents made that dream come true. When Korben showed up in his red ball gown and lipstick, his teachers and classmates were moved to tears.

Prom is a special event marking the end of high school, and everyone wants it to be memorable. Korben, who is 16, had an unforgettable night thanks to his supportive mom. She shared pictures of his prom outfit on Twitter, and her post quickly went viral. Many celebrities and fans liked and shared it, celebrating Korben’s unique and heartfelt choice.

Korben’s mom, Nina Green, shared that her son had always loved wearing dresses. As a teenager, he even performed as the “sassy” drag queen Miss Frou Frou. But for prom night, Korben had a new idea.

He wanted to attend prom as himself, but in a dress. This way, he could show off his feminine side while being true to who he is. Nina explained:

“He wanted to be himself, combining his masculine and feminine sides. He planned to wear a tuxedo on top and a dress on the bottom, inspired by Billy Porter.”

When Korben arrived at his school prom, wearing his unique outfit, everyone went wild with excitement. His classmates and teachers at Archbishop Sancroft High School in Harleston, Norfolk, cheered loudly for him.

Nina Green shared that many teachers were emotional as they watched Korben step out of the car. They were moved by his bravery and confidence. Nina said, “As soon as he got out of the car, everyone started cheering, and I was crying. Some of the teachers were crying too because he was being true to himself.”

Korben had asked to wear a dress to his prom when he was just 12, and his parents made sure to remember his request. When prom night arrived, they helped him get ready just the way he wanted and supported him both in person and online.

Korben looked fantastic in his ball gown, which had a flowing skirt, a sparkly jacket, a bow tie, and a matching small bag. Nina, his mom, took lots of photos of him before he left for prom and shared them on Twitter to show her support.

Nina Green was thrilled to share Korben’s prom look on Twitter and tagged Billy Porter and Michelle Visage from “RuPaul’s Drag Race” to get their opinions. Michelle Visage responded with excitement, saying, “Ohhhhhhhh yes! You are an amazing, beautiful mom and your child is a STAR.”

Michelle wasn’t the only one impressed. The tweet quickly went viral, with many people praising Korben’s fabulous prom outfit and expressing how happy they were for him.

Since Nina Green’s post about Korben’s prom outfit was shared, it has received over 4,000 retweets, more than 8,000 comments, and over 110,000 likes from celebrities and everyday people alike. One admirer commented:

“Looks fabulous! I absolutely love the gown/tux combo. I hope my son is still as confident and comfortable with himself at that age. Never lose your sparkle.”

Kirk Wills, who implied they made the dress, added, “I couldn’t be more proud of Korben; he rocked the look without a doubt. It was an honor to make this subtle look for his big night and see him rock his entrance.”

Although there were some negative comments, many people defended Korben. One fan responded, “Some people should have listened to their parents or grandparents: ‘If you have nothing nice to say, say nothing at all.’ If he wants to wear a dress, then that’s his choice, and his choice only. He’s not harming anyone.”

Korben’s mother, Nina, later shared her gratitude in a post, admitting she hadn’t expected such a positive response when she first shared the pictures. She wrote:

“The support and positivity have been overwhelming and have completely overshadowed the few negative comments, which we ignore. It’s his life, and I’m letting him live it.”

Korben realized how important it was to have the courage to be himself. He said, “It sends a message—you can be who you want to be.”

The following day, Nina and Korben attended Pride in London. There, a fan approached them, recognizing Korben as the boy in the red dress and telling him he was “amazing.”

These moments became unforgettable memories for Korben as he moved on to the next chapter in his life. Through this experience, Korben’s parents demonstrated the importance of allowing children to be themselves without imposing their own beliefs.

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